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Patients & Families

Patient Resources

Sylvie's Story

Learn more about how patients like Sylvie and her family are impacted by cholestatic liver diseases.

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PFIC Fact Sheet

This concise tool provides information on PFIC, the signs and symptoms and how it is diagnosed for patients, families and caregivers.

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PFIC: A Guide for Patients and Families

Learn more about this life-threatening pediatric liver disease with this educational brochure.

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ALGS Fact Sheet

This fact sheet provides information for patients, families, and caregivers on Alagille Syndrome (ALGS), including what causes it, the signs and symptoms, and how it is diagnosed.

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ALGS Infographic

Learn more about the common signs of Alagille Syndrome (ALGS) and what happens in an ALGS patient’s liver with this educational infographic.

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ALGS Resources

Learn more about Alagille syndrome (ALGS), a rare, multisystem genetic disorder and where to find resources and community support.

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Biliary Atresia Resources

The most common pediatric cholestatic liver disease and leading cause of pediatric liver transplant across all diseases. Learn about the disease and available resources.

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